Updates to the National Institute of Neurological Disorders and Stroke (NINDS) Cerebral Palsy Common Data Elements: Participant Condition Characteristics.
Year of Publication
Brandenburg, Joline; Mcintyre, Sarah; Feldman, Robin; Edun, Ilar; Esterlitz, Joy; Mendoza-Puccini, M. Carolina; Brandenburg, Joline; McIntyre, Sarah; Feldman, Robin; Edun, Ilar; Esterlitz, JoNINDS/AACPDM Cerebral Palsy CDE Oversight Committee and Working Group
PUB:American Academy for Cerebral Palsy and Developmental Medicine 74th Annual Virtual Meeting
Virtual Live Conference
The NINDS initiated the Common Data Elements (CDE) project to provide standardized data collection tools with consistent definitions for clinical neuroscience research. To ensure that the Cerebral Palsy (CP) CDEs remain a current and useful tool for investigators and their research teams, the CP CDE Oversight Committee (OC) periodically reviews the CP CDEs based on user feedback and research advancements to make recommendations regarding suggested corrections and updates.